National Sarcoidosis Society, NFP (NSS) was created in 1995 and Officially sanctioned in 1996 by Ms Glenda Fulton a now thirty year old Sarcoidosis survivor. NSS is a thirteen-year-old
grass root not-for-Profit
501 (c)(3) organization, the first of its kind in Chicago, Illinois
because of lack of information or educational awareness on this disease. In 13 years NSS has been able to address Minority Women with Sarcoidosis Health issues by providing services, information and educational awareness, advocacy,
support groups, forums,
Referrals, Sarcoidosis conference and assistance on a wide range of health-related issues, in regards to Sarcoidosis. To improve
overall health of minority women throughout the state of Illinois.
The mission of NSS is to support, empower and advocate
for those inflicted with
this disease while strengthening physician/ patient relationships and fighting for services, research, and ultimately a cure for Sarcoidosis.
In 1998 Mayor Richard M. Daley signed a Proclamation proclaiming November 1-30, 1998 to be Sarcoidosis
Awareness Month in Chicago. He went on to commend Ms Glenda Fulton for “bringing the citys' attention to this little Known, but
Ms. Fulton continues to be active in all aspects of public awareness from annual participation in the Bud Billiken
Parade to newspapers,
radio & TV, (over 300 live shows) Appearances and interviews. With this activism, the number of support
groups and state wide
partnerships have grown over the pass 13 Years. Attendance has grown as well as awareness, NSS early grass-roots efforts garnered attention and support of the Regional Organ Bank of Illinois (African American Task Force) now The Gift
Of Hope, the National Institutes of Health – The Public Interest Organization Group, the Lions Club, the Department of Veterans Affairs Center for Minority Veterans in Washington D.C. and the Illinois Health Coalition
for Communities of Color.
Through Ms. Fulton‘s efforts with the Illinois State Legislators Two pieces of Legislation has been brought about, one which was Passed (in June 1996 as a result, a Public Act Bill
to the public Health Department
to bring forth information on symptoms and treatment of Sarcoidosis as well as contact information for any organizations or Research groups afflicted with the disease. The second bill passed
in July 2005 put Sarcoidosis
on the 1040 Illinois State tax check-off for 2006), these two Sarcoidosis bills are the only Legislation of it kind.